So I referred to a "motivational" talk from the pediatricians office last time I blogged and the family meeting that ensued. At some point after that we decided to switch Simon to a higher calorie formula. We switched from Complete to Boost. The boost offered us a flavor and also 360 calories per 8 ounces rather than the 250 of complete. The results the first day were sensational, Simon was opening his mouth wide and keeping his hands out of our way. He finished one of those in 15 minutes, which was a feeding miracle and record for us!! That day he had 1800 calories!!! Things continued on pretty good for about 2 weeks maybe...but then the feedings got hard again.
We had been battling the pressures we were feeling to get a feeding tube from every angle. Finally after a few months of feeding him Boost only (3 a day) and prunes (we have to give him this to balance the constipation that comes from the boost) the feedings weren't going much better. We were still spending too much time and now, instead of spending time getting purees of good stuff (the avocados, coconut oil, nuts and other protein sources, fruits, veggies, supplements) we were spending almost the same amount of time and only getting, synthetic food in him....sadly with lots of sugar (that is what helped him like the taste!) So the idea of getting him the feeding tube so that we could actually blend REAL food and put it into his belly with NO STRUGGLE started to sound great.